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Dupuytrens Contracture .......anyone had/got it


lowlandtrees
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[quote name='Martin E' timestamp='1428687645' post='2743843']
My understanding these days is that the NHS won't get involved until the problem reaches a rather more advanced stage. I don't think early intervention is an option due to cost presumably.
[/quote]

This is the impression I got when I mentioned the small lumps that had appeared on my right hand to my GP a few years ago. He just said "they don't do anything with them these days".

Luckily mine haven't increased at all since then.

Seems crazy to me that they would let something get to a point where something as drastic as amputation might be required when they could address it sooner, but there you go, that's the NHS in the 21st Century for you unfortunately.

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[quote name='RAY AGAINST THE MACHINE' timestamp='1428689870' post='2743878']
My brother was a heavy drinker. He has cut down to 4 pints a day now. Also, he was always doing manual work/ painting and decorating etc. may tie in with some of the comments above ?
[/quote]

As I say, they did seem to make quite a big thing about knowing my drinking habits when I had mine done, so maybe there is some connection there.

On the other hand (if you pardon the expression) I've never done a day's hard manual labour in my life & still developed them.

Guess it's just like most things, partly genetic, partly crappy luck, and not helped by hammering your body with various toxins & poisons in the pursuit of a "good time"....

Edited by RhysP
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There is an orthopaedic surgeon in my borough that specialises in the management of Dupuytrens. Once he has done the initial assessment, he will present the options appropriate for that time. He really does know what's good for a given circumstance. Of course, the patient still has to consent to anything that happens.

Recommend you find the name of your area specialist and research what he's like. If he's good, recommend him to your GP.

Best wishes with it :)

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[quote name='essexbasscat' timestamp='1428701423' post='2743998']
There is an orthopaedic surgeon in my borough that specialises in the management of Dupuytrens. Once he has done the initial assessment, he will present the options appropriate for that time. He really does know what's good for a given circumstance. Of course, the patient still has to consent to anything that happens.

Recommend you find the name of your area specialist and research what he's like. If he's good, recommend him to your GP.

Best wishes with it :)
[/quote]
Hi. How would you go about this. Is there a professional body or institution?

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I've done some reflection on this since last posting.

Since your GP has already done the referral, you could contact the GP's and ask which hospital the referral was made to. Once this is known, you can contact the orthopaedic department for further info (including the expected waiting list time). Google the names of the surgeons in the department and see what comes up.

Also, you could join local special interest groups, they will be a gold mine of information.

You're welcome to PM me if you like

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