We had a friend who we helped through it, and it was so totally frustrating - both her, and it is worse because you know it isn't their fault, but dealing with the demon in them is very frustrating, and trying to get some service that is interested or able to do something. Got something in the end, and things got a lot better, but as you say, the damage is always there, both phsycologically and mentally.
Glad to hear your daughter got through it and sympathies to anyone else out there who has to deal with it